Being positive all of the time when dealing with illness is unrealistic. — Tamara McClintock Greenberg Psy.D.
Getting a diagnosis for Postural Orthostatic Tachycardia Syndrome (POTS) can undeniably be difficult news to accept. The blood that should be circulating all over remains on the lower half of the body. Whenever you stand up, your heart may always beat abnormally fast – 30 times or more – to provide oxygen to the brain. Worse, there is no cure for this condition at the moment.
Due to the setbacks that you might experience while dealing with this illness, it is likely for you to feel a lot of hate. For yourself – because you ended up with an incurable disease. For the doctors – because they cannot offer a long-term solution.
If you’re tired of being bitter, though, you can improve your mental health by doing any of the following:
1. Change Your Lifestyle
Off the bat, keep in mind that what and how you eat can immensely affect the illness. The basic idea is that decreasing your carbohydrate or protein intake while increasing the amount of salt or fluids you consume is great for your body. You should also get more sleep, exercise, and say no to alcohol.
2. Embrace Technology
Since POTS may prevent you from performing even mundane tasks like cleaning the house or going to a drive-thru place, you don’t have to feel guilty about embracing technology. Say, download an app or get the number of the restaurants you want to receive food from so that they can deliver it at your doorstep. You can look for robotic appliances as well that may be useful in and out of your home, including a mobility scooter.
Every day patients walk out of our facility with a new lease on life. — Scott Dehorty MSW, LCSW-C
3. Learn About The Illness
It will also do you a lot of good if you start knowing more about POTS than what the specialists can tell you. There are excellent resources on the internet regarding the case studies and history of the illness that you can undoubtedly find after a few clicks. If that does not suffice, you may visit a local library to search for other learning materials.
4. Take Care Of Yourself
Considering your hours often get occupied by work, family, or friends, you should realize that that is no longer acceptable after getting diagnosed with POTS. People with this disease are known to be extra sensitive to stress. When problems related to these areas occur at once, they may trigger your condition and keep you from functioning for days. Thus, it matters to make self-pampering your #1 priority all the time.
Similarly, you don’t need to be in tiptop shape to help. In case you have some money to spare, you can donate to charities that aid less fortunate patients, as well as to the research facilities that try to find a cure for POTS. On a good day, you may join a support group to offer a shoulder to lean or cry on to new patients or give them counseling.
Even your most wrecked moments become productive when they contribute essential data to your quest for improvement. — Deborah Barrett Ph.D., LCSW
A POTS diagnosis is not enough reason for you to think that life will become dull from that day forward. Millions of people out there have incurable diseases; many of them are even at the terminal stage of their illness. Despite that, they never get tired of believing that there’s something good they can do before passing. These people should serve as your inspiration to improve your mental health and be generally kinder to yourself.
Uncertainty about how your body may respond in a given situation–whether, for example, you will experience a pain flare-up or reprieve if you venture out with friends–makes planning risky, even frightening. — Deborah Barrett Ph.D., LCSW
When people think of diseases, they usually imagine an unusual object, such as a foreign germ or an abnormal cancer cell, as being the perpetrator of the disease. People can sometimes find it hard to imagine diseases being caused by a component of the body itself.
Constant attention to blood sugar levels, dietary restrictions, and feeling like you can’t enjoy what everyone else is eating are just some of the frustrations that those with diabetes experience every day. — Tamara McClintock Greenberg Psy.D.
According to research, people with diabetes are twice as likely to suffer from depression as those that do not have the condition. It is not known what the connection is – whether people with diabetes are more likely to develop depression or the other way round. Depression makes it much more difficult to manage the symptoms of diabetes so if you are diabetic and suffer from depression you should reach out. Find a Depression Chat Room or speak to a friend. According to Betterhelp, doing so may be helpful.
DYSAUTONOMIA IN CHILDREN
Dysautonomia is thought to afflict more than seventy million people worldwide. The disorder is caused by damage to the nerves that control involuntary body functions. These vital functions of which we remain largely unaware include blood pressure, perspiration, heartbeat, gastrointestinal processes and temperature control. They are all managed by the autonomic neural system, which when damaged, disrupts the messages between the brain and the body. The most common cause of damage to this system is diabetes, but it can be caused by viral infections and even by some medications. Better understand this condition, and learn how to care for your child while not overlooking what you need to take care of yourself, even if you need professional support & help.
I found it very interesting to learn that Autoimmune Disorders occur almost exclusively in developed countries. People in underdeveloped countries without our modern amenities like clean running water, washing machines, flushing toilets, and good healthcare don’t really experience these diseases. — Linda Walter LCSW
Despite being a real and terrifying condition for some, Postural Orthostatic Tachycardia Syndrome is an often misdiagnosed syndrome. Up to this day, medical professionals are still baffled by the causes and treatments of this condition.
There are thousands of diseases and conditions that people can have. Because of this, it’s hard to know of every single one, unless you’re in the medical field. Many of us will remember about conditions such as common flu, autism, and Alzheimer’s disease. However, how many of us know about neurocardiogenic syncope? Read on to find out about this condition that affects millions of individuals around the globe.
There is no arguing the statistics that autoimmune diseases, unresolved gut health issues and mysterious chronic health issues seem to be on the rise and our medical community is trying to keep up. — Danielle Swimm LCPC
“It feels like a roller coaster you can never get off of – being judged by the world for looking normal when inside you are anything but.”
This is what Susan says about her life and how she feels living with Dysautonomia.
With an autoimmune disorder, something within our body causes an abnormal reaction in our immune system, in essence, causing our immune system to fight the body itself. — Linda Walter LCSW
The challenge of living with a sick person who depends on you for their care is very stressful such as in the case of patients with dysautonomia. These patients suffer from a number of symptoms which can greatly affect or even impair their activities of daily living. It can include but is not limited to orthostatic hypotension or a sudden drop in blood pressure, and incontinence or sexual dysfunction. One of the most common causes of autonomic dysfunction is actually diabetes mellitus.
Multiple sclerosis or MS is a crippling and debilitating chronic disease feared by mostly women from 15 to 60 years old. The medical condition is an autoimmune disease. This means that the cause is unknown. Hence, the only valid explanation that medical doctors can give is that the immune system of the person is attacking the protective sheath of the nerve fibers. This then leads to communication problems between the brain and the rest of the body. In the long run, the disease can result in brain atrophy and slowly paralyzes the person.
I’ve been trying to walk a mile every day. This is not a big deal for many of you, but it’s just the right amount of challenge for me right now. — Katie Willard Virant MSW, JD, LCSW