5 Ways To Support A Loved One With Dysautonomia

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We all want the same thing for the people we love, and that is to care for them. We want to make them feel that we value their presence in our lives. At the same time, we also want the best things for them, which is why we also feel bad when they are suffering from any challenge or struggle with a problem. According to a journal on online therapy, the human person is always sensitive to the feelings of the people who matter in his life. As such, we must not feel shocked to find out that we usually have strong feelings for our loved ones.

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Having data on what actually helps (and hurts) is crucial for living well with chronic pain because, unfortunately, acting from intuition or common sense sometimes worsens symptoms. — Deborah Barrett Ph.D., LCSW

Unfortunately, there are some bad days in life that you may share with your partner. In this article, our primary focus would be on the disorder named dysautonomia. It is a complication in a person’s autonomic nervous system or ANS. As a result, the individual who is suffering from this illness will experience some failures in his internal organs. Dysautonomia affects the blood vessels, intestines, heart, bladder and even pupils.

If your loved one is going through this disorder, it is best if you will make an effort to remain strong for the said person. Make sure that you show him that you are always there for him no matter what happens. Below is a list of the five ways to show how you can support your spouse or boyfriend in this challenging time of his life:

Maintain Good Communication Line

Never forget the importance of communicating effectively with your partner. Let him know that he can open up to you at any time of the day. He must not feel that you are drifting away from him because of his current health condition. Instead, show him signs that he can approach you anytime whenever he wants to talk. Be sure to be sensitive to all the things that you will tell him as he may get hurt easily.

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In my experience, people struggling with illness want acknowledgement about how hard their situation is. — Tamara McClintock Greenberg Psy.D.

Never Blame Him

Stop looking for a reason to blame your partner’s condition. Never make the mistake of telling him the line “I told you so” when it comes to referring to his state. At the same time, do not say to him that his misery is a product of his mindset. Take note that he is going through a tough time and he does not need to hear your negativity. Instead, inspire him to keep going.

Spend Quality Time Together

Find time to bond with your partner who is suffering from dysautonomia. Do not let his sickness prevent you from having quality time together. It is highly recommended for both of you to take some time off from your usual activities and go for stuff that you can enjoy doing together. The advantage of doing this regularly is that you can maintain your intimate relationship with the other person. At the same time, getting his much-needed rest with the one he loves can also improve his mental health. As such, he may develop a better tolerance for his sickness.

Accompany Him In All Checkups

One of the basic things that you can also do to show your support to the other person is to accompany him in all medical checkups. If possible, cancel your appointments on the day when he is set to meet his doctor. He needs your moral support. Take note that you are the only person who can make him feel calm whenever he feels threatened and afraid by the symptoms of dysautonomia.

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If almost half of us share this experience, why aren’t we talking about it? — Katie Willard Virant MSW, JD, LCSW

Make Him Feel Loved At All Times

Do not underestimate the significance of showing love and affection to the other person regularly. Your never-ending support to the one you love will be one of the reasons why your partner is going to fight the battle against the disorder. What you need to do to make him feel this way and to sustain such thought is to remind him every single day that you love him. You can also surprise him on certain days so that he can feel happy despite having the condition.

Remember that you are a strong person and you can get through this stage in your life. Just have faith that things are going to turn for the better when the time is right.

Anxiety Over Autonomic Dysfunction: An In-Depth Explanation Of The Condition 

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It can be trying for people who are ill when friends and family encourage patients to feel happy or optimistic. — Tamara McClintock Greenberg Psy.D.

The best and simplest way to understand the nervous system is its work with reflex actions. It is the junction between the conscious and subconscious mind. Therefore, any activity or task a person’s body has to do during the day that gets controlled by the nervous system is an autonomic function. With that said, the anxiety of knowing more about autonomic dysfunction gets explained in this article. 

The autonomic nervous system is a part of a nerve network that controls the body.  Its basic structure consists of the central control units located in the specific part of the brain and spinal cord responsible in the body’s vital organs automatic function without the need of a person’s subconscious thinking.  Examples of these processes are the narrowing of the blood vessels, monitoring the body’s temperature, and the non-stop beating of the heart. The nerves serve as the controlling unit of the brain and spinal cord to reach out with the other vital organs. 

 

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Autonomic Problems In Parkinson’s Disease

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Source: en.wikipedia.org

There have been current advances as well as the experience of doctors, the healthcare team, and family members when taking care of patients with Parkinson’s disease. They have revealed that autonomic problems play a crucial role in the evaluation of patients and that the signs and symptoms that present are sometimes the cause of disability. Symptoms seen in Parkinson’s disease include cardiovascular dysfunction, sweating, and gastrointestinal failure, among others.

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5 Ways To Improve Your Mental Health After POTS Diagnosis

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Being positive all of the time when dealing with illness is unrealistic. — Tamara McClintock Greenberg Psy.D.

Getting a diagnosis for Postural Orthostatic Tachycardia Syndrome (POTS) can undeniably be difficult news to accept. The blood that should be circulating all over remains on the lower half of the body. Whenever you stand up, your heart may always beat abnormally fast – 30 times or more – to provide oxygen to the brain. Worse, there is no cure for this condition at the moment.

Due to the setbacks that you might experience while dealing with this illness, it is likely for you to feel a lot of hate. For yourself – because you ended up with an incurable disease. For the doctors – because they cannot offer a long-term solution.

If you’re tired of being bitter, though, you can improve your mental health by doing any of the following:

1. Change Your Lifestyle

Off the bat, keep in mind that what and how you eat can immensely affect the illness. The basic idea is that decreasing your carbohydrate or protein intake while increasing the amount of salt or fluids you consume is great for your body. You should also get more sleep, exercise, and say no to alcohol.

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2. Embrace Technology

Since POTS may prevent you from performing even mundane tasks like cleaning the house or going to a drive-thru place, you don’t have to feel guilty about embracing technology. Say, download an app or get the number of the restaurants you want to receive food from so that they can deliver it at your doorstep. You can look for robotic appliances as well that may be useful in and out of your home, including a mobility scooter.

 Every day patients walk out of our facility with a new lease on life. — Scott Dehorty MSW, LCSW-C

3. Learn About The Illness

It will also do you a lot of good if you start knowing more about POTS than what the specialists can tell you. There are excellent resources on the internet regarding the case studies and history of the illness that you can undoubtedly find after a few clicks. If that does not suffice, you may visit a local library to search for other learning materials.

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4. Take Care Of Yourself 

Considering your hours often get occupied by work, family, or friends, you should realize that that is no longer acceptable after getting diagnosed with POTS. People with this disease are known to be extra sensitive to stress. When problems related to these areas occur at once, they may trigger your condition and keep you from functioning for days. Thus, it matters to make self-pampering your #1 priority all the time.

5. Volunteer

Similarly, you don’t need to be in tiptop shape to help. In case you have some money to spare, you can donate to charities that aid less fortunate patients, as well as to the research facilities that try to find a cure for POTS. On a good day, you may join a support group to offer a shoulder to lean or cry on to new patients or give them counseling.

Even your most wrecked moments become productive when they contribute essential data to your quest for improvement. — Deborah Barrett Ph.D., LCSW

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Final Thoughts

A POTS diagnosis is not enough reason for you to think that life will become dull from that day forward. Millions of people out there have incurable diseases; many of them are even at the terminal stage of their illness. Despite that, they never get tired of believing that there’s something good they can do before passing. These people should serve as your inspiration to improve your mental health and be generally kinder to yourself.

 

 

When Defenders Become Traitors: Understanding Autoimmune Diseases In Mental Health 

Uncertainty about how your body may respond in a given situation–whether, for example, you will experience a pain flare-up or reprieve if you venture out with friends–makes planning risky, even frightening. — Deborah Barrett Ph.D., LCSW

When people think of diseases, they usually imagine an unusual object, such as a foreign germ or an abnormal cancer cell, as being the perpetrator of the disease. People can sometimes find it hard to imagine diseases being caused by a component of the body itself.

 

Source: commons.wikimedia.org

 

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Depression and Diabetes A Risk Factor for Diabetic Autonomic Neuropathy?

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Source: thediabetescouncil.com

Constant attention to blood sugar levels, dietary restrictions, and feeling like you can’t enjoy what everyone else is eating are just some of the frustrations that those with diabetes experience every day. — Tamara McClintock Greenberg Psy.D.

According to research, people with diabetes are twice as likely to suffer from depression as those that do not have the condition. It is not known what the connection is – whether people with diabetes are more likely to develop depression or the other way round. Depression makes it much more difficult to manage the symptoms of diabetes so if you are diabetic and suffer from depression you should reach out. Find a Depression Chat Room or speak to a friend. According to Betterhelp, doing so may be helpful.

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When Your Child Is Diagnosed With Dysautonomia

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 DYSAUTONOMIA IN CHILDREN

Source: jnetics.org

 

Dysautonomia is thought to afflict more than seventy million people worldwide. The disorder is caused by damage to the nerves that control involuntary body functions. These vital functions of which we remain largely unaware include blood pressure, perspiration, heartbeat, gastrointestinal processes and temperature control. They are all managed by the autonomic neural system, which when damaged, disrupts the messages between the brain and the body. The most common cause of damage to this system is diabetes, but it can be caused by viral infections and even by some medications. Better understand this condition, and learn how to care for your child while not overlooking what you need to take care of yourself, even if you need professional support & help.

I found it very interesting to learn that Autoimmune Disorders occur almost exclusively in developed countries. People in underdeveloped countries without our modern amenities like clean running water, washing machines, flushing toilets, and good healthcare don’t really experience these diseases. — Linda Walter LCSW

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Understanding Neurocardiogenic Syncope

There are thousands of diseases and conditions that people can have. Because of this, it’s hard to know of every single one, unless you’re in the medical field. Many of us will remember about conditions such as common flu, autism, and Alzheimer’s disease. However, how many of us know about neurocardiogenic syncope? Read on to find out about this condition that affects millions of individuals around the globe.

There is no arguing the statistics that autoimmune diseases, unresolved gut health issues and mysterious chronic health issues seem to be on the rise and our medical community is trying to keep up. — Danielle Swimm LCPC

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