This is the second part of the article which tackles all about Postural Orthostatic Tachycardia Syndrome, which is a form of dysautonomia. To continue, here are more facts about the illness.
Even If The Person With Postural Orthostatic Tachycardia Syndrome Is Hydrated, The Blood Supply Will Decline – A Fatal Illness Called Hypovolemic.
Though there are tests such as blood and urines tests are given to the patients, there are instances where hypovolemia is not detected. Since patients experiencing POTS have problems with the stability of their red blood cells and plasma, medical practitioners might see this as a sign of POTS and not hypovolemia. Instead of urine tests and blood tests, blood volume analysis with a radio-tracer should be used to know if the POTS patient is also experiencing hypovolemia.
What we tend not to communicate—what there seems not to be space for—is the emotional implications of living with chronic illness. — Katie Willard Virant MSW, JD, LCSW
Despite The Fact That Postural Orthostatic Tachycardia Syndrome Is A Common Illness, Doctors Misdiagnose It With Another Disorder.
The average time to diagnose a POTS patient is five years, according to research. Moreover, 85% of those people with POTS are misdiagnosed, and medical practitioners conclude that it is a mental health condition. They tag along with a similar psychiatric label. Some of the symptoms might be misinterpreted into a psychiatric disorder, but research shows that POTS patients are more likely to not have psychiatric illnesses compared to the healthy group.
Postural Orthostatic Tachycardia Syndrome Is Permanent For Most People.
Some people consider POTS as a “teenage syndrome.” They look at it as something that would “go away” after the teenager years. There is a decade-long backdated research by Mayo Clinic. It showed that in an average of 5 years after teenagers with POTS came back to them, 52.8% had improved on their symptoms, but POTS is still present in their bodies. A slim 18.2% of those POTS have fully recovered. According to an analysis led by Dysautonomia International, out of 700 people, 48% acquired their first symptoms of POTS by the time they were 18 years old.
The Symptoms Of Postural Orthostatic Tachycardia Syndrome Differs From One Person To Another.
There are symptoms of extremely severe POTS, and also, there are symptoms that some might not consider as an indicator for the illness. Approximately 25% of POTS patients who cannot even go to work or attend school because of their pains – this is also another indicator. It just shows that each person suffers from different symptoms, even if they have the same illness (POTS).
The condition may affect physical abilities, independence, and even appearance. — Dan Mager MSW
People With Postural Orthostatic Tachycardia Syndrome Must Be Sent To Labs And Centers Which Provide Autonomic Function Testing.
There are different tests available in labs, but it is necessary for those patients who are subjected to have POTS to take the Autonomic function testing. It can be a series of tests which encompass tilt with heart rate variability, Valsalva, and Quantitative Sudomotor Axon Reflex Test (QSART).
Complete disavowal of negative information about illness can be problematic; cautious optimism is often ideal. — Tamara McClintock Greenberg Psy.D.
Postural Orthostatic Tachycardia Syndrome POTS is a “not rare” illness or condition, but it must not and should not be taken for granted. Medical professionals are on their toes in finding treatment for the said disorder; still, people should be well informed so that they can also take part in the coping and treatment.
This concludes Part 2 of Facts About Postural Orthostatic Tachycardia Syndrome (POTS). I hope that you have learned many things with this 2-part article on POTS and dysautonomia.