The Importance Of Family For Dysautonomia Patients In A Public Health Crisis

In these trying times, having a reliable support system may already be considered a luxury. The current public health crisis stripped off the “normal” people knew. The pandemic brought about increased uncertainty and heightened anxiety to those already suffering from it. People wake up every day not knowing when everything would be stable again.

According to Allison Abrams, LCSW-R, a licensed psychotherapist and mental health advocate, “Each one of us is dealing with the consequences of this public health problem in various forms, whether health-wise, economic, or other.” She adds that “All of us will react differently depending on our external and internal resources, our strength and our psychological wellness. Don’t hesitate to seek support.”

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The effects, however, of this public health crisis may be more severe for people having dysautonomia. They are more at risk of developing illnesses in the mental health of dysautonomia patients or even aggravating the current situation. At this point is where the role of their family as a support system comes into play.

Dysautonomia As A Disease

Due to the variety of possible reasons behind it — environment, disease, or genetic causes — dysautonomia is difficult to identify. However, in all cases, it is a disorder of the nervous system affecting other parts of the body, such as the heart and the blood vessels. There is no known cure to this disease. Usually, the treatment of dysautonomia is supportive.

Although dysautonomia is not a psychological disease, it still affects brain functions. Also, it may contribute to the stress experienced by patients daily. Medical experts say that strategies and techniques relating to psychological support are helpful for dysautonomia patients.

In line with that, stress management techniques are helpful not only in providing for temporary distractions but also in relieving symptoms and giving a sense of order and control. These techniques include yoga, meditation, massage, and acupuncture.

Increasing Escapism In A Public Health Crisis

In the context of a public health crisis, finding and maintaining a support system is vital. Most people are stuck at home or have their movements limited due to fear of contracting the virus, thereby further increasing the numbers. With that, there is no more separation between personal space and workspace. The tendency then is for people to feel burned out faster.

To compensate, people resort to different coping mechanisms, which may be healthy or unhealthy. Some people turn to activities that alleviate stress and help contribute to increased wellness. These activities include working out, meditating, gardening, baking, cooking, making music, writing, dancing, and walking.

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On the flip side, other people resort to activities such that can be a result of dysautonomia sleeping disorders, playing games excessively, binge-watching television shows, and occasional drinking or smoking. These activities may well be a sign of “escapist” behavior, a mental diversion habit resorted to by people when faced with various stressors.

How The Family Can Help

Friends, apart from family members, also form part of a support system for dysautonomia patients. Patients can communicate with friends through various platforms, such as email, text messaging, and video calls or conferencing. However, for the following reasons, the family may be considered primary support for said patients.

  • Providing Immediate Support

As most families live together under the same roof, family members can provide immediate support, whether emotional, financial, or psychological. It is in contrast with the patient having to resort to seeking help from friends, who, because of the public health crisis, may be living at a distance from the patient.

  • Sense Of Togetherness

More than anything, dysautonomia patients have to feel that they are not alone. It helps in managing the stress that they accumulate. Having family members who are living under the same roof, probably a few doors away from the patient, can help tremendously, especially during times when the patient resorts to unhealthy coping mechanisms to alleviate stress.

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  • Better Understanding

Having family members who have lived with the patient for a longer time than any other friend or loved ones can help the patient be better understood. This advantage is visible in terms of the patient’s reaction to particular situations, or in dealing with the patients’ stressors. In turn, the family members can extend help faster and more effectively.

Conclusion

In sum, handling stress can be challenging, especially when we have a public health crisis. There are stressors on a regular basis. But there may be additional anxiety on top of those stressors since there is no certainty on how we move forward with the situation.

Generally, people have different ways to cope with stress. However, dysautonomia patients may have a tougher time dealing with the current situation, in addition to worrying about battling their disease.

Therefore, the family is an essential mix in the recipe for a dependable and effective support system for dysautonomia patients. Family members can offer help in various forms, all of which would likely contribute to the overall increase in the health and wellness of the patient.

 

 

How It Is To Be Sickly During The Pandemic

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The coronavirus outbreak has tested the resilience of humanity. Because of this pandemic, almost everybody has been affected. While government and health officials are busy thinking of ways on how to lessen the impact of this pandemic to its people, each of us is looking for ways to survive on our own. We need to learn and survive amidst this lockdown. Though government and private organizations are offering help in one way or another, we still need sustainable ways to help us get through amidst this pandemic, especially for families with low income and for those who have many family members.

Continue reading “How It Is To Be Sickly During The Pandemic”

Physicians Want You To Ask Them These 3 Things In Diagnosing POTS

The Dysautonomia International Conference 2019 brought together clinicians, patients, caregivers, and advocacy groups to discuss Postural Orthostatic Tachycardia Syndrome (POTS) and discuss the most current research among medical doctors. Specialists from the University of Utah, Mayo Clinic, and Brown Medical School, among others, presented ways on how dysautonomia impacts specific organ systems.

For POTS patients, it is a collective experience to suffer from symptoms that a physical test cannot diagnose. Through panel discussions, the medical conference shed light on the practical approaches that physicians have used to diagnose dysautonomia.

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1. “Will you listen first before checking my medical history?”

Most of the time, we dread going to the doctor for fear they will see something wrong with us. It’s not often that we meet physicians who can sit with us longer than ten minutes, listening carefully to our symptoms and patient history. Expert clinicians suggest that patients’ beliefs could change the diagnosis journey immensely, citing examples of treating options that didn’t require looking at previous medical records that may contain biased information. 

2. “Why do you think my illness is not a rare disease?”

We don’t want to tell doctors they are wrong, but we want them to think that they could be mistaken. Asking questions that consider even the rarest of diseases can benefit patients because it encourages searching for information. It rings true, especially for POTS patients who have been suffering from the wrong diagnoses or lack thereof.

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3. “What else can I do to learn more about my condition?”

When doctors feel that they have your support as a patient, they open up to you more and vice versa. This relationship can transform our healing journeys and help others along the way, too. As more studies emerge, patients are encouraged to seek each other, share experiences, and add to the growing research that fund treatments and medical conferences.

On your next medical check-up, open up to your doctor and try to ask these questions. If it helps in managing the pain, doctors will do what they can to help.

POTS Patients Must Follow Stay-At-Home Order

Last year, I finally came at peace with the fact that I have postural orthostatic tachycardia syndrome (POTS). I got diagnosed with this illness in 2018 at the height of my career as a marketing consultant. The news hit me so hard that I soon fell into depression, and it did not feel like I could continue living again.

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But my family and doctor this never lost hope in me. My parents stayed in my house for the most part, while my doctors called me to check on how I was doing. My bitterness started to dissolve gradually until I no longer felt like ending my life. Soon enough, I was able to accept that POTS would forever be a part of me and that I would have to work around it.

I picked myself up and contacted my old clients so that I could work from home. This setup was more ideal for me than going back to the office because I did not need to push myself to get up when I was hurting. I managed to regain my social life, too, and even attend some parties.

However, my life changed again when the governor of California ordered us to stay at home amid the coronavirus outbreak. The regulation was notably stricter for me than anyone else because I was technically immuno-compromised. I had to get my groceries delivered; none of my friends could visit me.

Did it sadden me? Yes, of course. But did I wish there was no quarantine? No way—not with the coronavirus still on the loose. Here’s why I won’t ever break the stay-at-home order.

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It Is Safe At Home

Your house is the best place to be at the moment—walls shielding you from the people who may be carriers of the virus. You are not brushing against strangers who may not even know they have it, either.

Because of the POTS, it is effortless for you to catch the coronavirus. But there is no need to keep on thinking if you already have COVID-19 if you avoid going out.

I Don’t Have A Death Wish

That’s correct—I have no dream of dying before I even turn 40 years old. Perhaps during my depressed days, I did; however, it’s very well at the back of my head at present. I love the life that I have, even though it does not seem too exciting for other people.

This is the reason why quarantine is ideal for me. I can imagine myself contracting COVID-19 in less than an hour of staying outside. If POTS’ extreme symptoms have not killed me before, the overlapping effects of the coronavirus may do it.

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It Saves Everyone From Worrying

I heard from the news that COVID-19 patients were not supposed to accept visitors wherever they might be. Their parents, siblings, and close friends, therefore, had no other choice but to talk to their infected loved ones online. However, we all know that it does nothing to reduce their worries.

Now, I am aware that I already brought a lifetime worth of stress to my parents when I developed depression after my POTS diagnosis. They no longer need to go through that again, so it is best not to risk my health by breaking the stay-at-home order.

Final Thoughts

I feel a deep sense of appreciation for life now more than ever. Sadly, a lot of people have not been so lucky to get away from or win against the coronavirus. However, those of us who do not have COVID-19 have an opportunity to avoid becoming new hosts of the virus by staying at home. Thus, whether you have an incurable disease like me or not, follow what the governors tell you to do at this time.

Living With Dysautonomia – Dysautonomia Live

Do you or someone you know is diagnosed with an autoimmune disorder and they have to start living with dysautonomia?

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There used to be a time when I dealt with so much pain every day, and no doctor in the local hospital in our small city could tell me its cause.Living with dysautonomia disrupted my life for months and kept me from doing the things I loved. Then, someone suggested going to a specialist. And what did they find out?

The 2017 MSA Conference happened in Nashville, Tennessee, and was the Annual MSA Patient and Family Conference.  Around 200 families attended the event, and 2000 people streamed it online. This event put more emphasis on updates about Multiple System Atrophy (MSA) of the critical advances in the study of the disease, including treatment.

There is no definitive test for dysautonomia. The condition is often diagnosed by taking a thorough medical history and ruling out other medical conditions with similar symptoms. People living with this condition struggle to get up in bed. They have problems with focus, practice, and management. As a result, they should eat a healthy diet and avoid caffeinated beverages. They should also veer away from exhausting events. Increasing awareness about living with dysautonomia can help save lives.

How Does It Feel Living With Dysautonomia?

Living with dysautonomia means undergoing the necessary treatment for dysautonomia, according to healthcare providers. This also means dealing with the stress, anxiety, and physical symptoms of the condition. However, a patient that is dealing with the condition is not simply managed with medications. Because someone with the illness may suffer from recurring thoughts, worries, and depression, it’s equally important to consider their wellness and manage their stress (through yoga, healthy nutritional food, standing exercises, etc.) to their benefit. This is where therapy can help someone with a condition like dysautonomia.

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Therapy Treatment For People Living With Dysautonomia

Therapy for a primary condition like postural orthostatic tachycardia syndrome (POTS) or dysautonomia is different from taking medication. It can show you ways to relax, perceive situations in a new light, and generate better coping and problem-solving abilities. Anxiety disorders vary considerably, some of which are a result of other issues like high blood pressure, fainting spells, dizziness, poor food choices or diet, lack of friends, limited walking or exercise, not treating diabetes, nausea, or chronic fatigue in my case. So when seeking therapy from physicians for someone managing autonomic nervous system dysfunction, it should lead toward your affected forms, severe cases, and diagnosis.

Dysautonomia is a condition that can cause headaches, dizziness, and fainting. People with the condition are unable to regulate their blood pressure and heart rate, which can make it hard to stay upright or even lie down. There are many different types of dysautonomia, but all share some common symptoms, concerns, progress, and treatment options. There is no cure for dysautonomia, but there are reviewed ways and tips to manage and cope with the condition and improve your ability. Acupuncture is an example.

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Cognitive Behavioral Therapy (CBT) For Dysautonomia

Considered a widely used approach, it has shown effectiveness in the alleviation of panic disorder, social anxiety disorder, and phobias, among many other conditions. Patients with MSA tend to develop mental illnesses. Thus, CBT can help address distorted perceptions of the way many people with dysautonomia look at the world and themselves. It mainly involves two components:

Cognitive Therapy For Dysautonomia

Examines the contribution of negative thoughts to your dysautonomia-induced anxiety.

Behavior Therapy For Dysautonomia

Examines your behavior and help in handling the situation.

Exposure Therapy

People with Multiple System Atrophy (MSA often experience anxiety. A patient with dysautonomia depends on inconvenient actions to avoid symptoms of fear, and it’s only natural to avoid the things that scare you. However, the problem with this behavior is you never get the opportunity to overcome and walk past it. You can be stuck with fear and do irrational behaviors all your life to evade it, according to doctors.

Exposure therapy allows you to confront your fears. Its objective is to expose you to it numerous times until you gain control over your fear.

Thoughts On Dysautonomia

Primary dysautonomia is an umbrella term that can affect the peripheral nervous system or sympathetic nervous system and the physical health of familial patients chronically and progressively. It adversely affects the mental health of dysautonomia patients and increases brain fog and chronic illness symptoms and likely reduces blood flow and high heart rate if you don’t make vast improvements to raise awareness about this medical condition and other autonomic disorders. However, the diagnosed condition won’t be as difficult to cure as it may seem based on research body if you have proper support systems and treatments from healthcare professionals (for example, a physician) in your daily life.

Dysautonomia therapy methods such as talk therapy can ultimately help identify sores in the muscles caused by disorders in the nervous system. So, it’s important for you not to lie to your therapist about your medical history. Give your therapist access to your experiences. Make lives count.

Living With Dysautonomia FAQs

  1. Can you live fully with dysautonomia?

Absolutely, it is possible to lead a fulfilling life with dysautonomia syndrome. While the condition can present challenges, individuals with dysautonomia can thrive by working closely with healthcare providers to manage symptoms through medication and lifestyle modifications. Building a strong support network, practicing self-care, setting realistic goals, and connecting with others facing similar challenges are essential components of living fully with dysautonomia. Prioritizing overall health and well-being is key to achieving a satisfying and meaningful life despite the challenges posed by dysautonomia.

  1. What worsens dysautonomia?

Dysautonomia symptoms can be worsened by various factors, although triggers can differ from person to person. Common exacerbating factors include dehydration, heat, stress, physical exertion, infections, certain medications, alcohol, caffeine, prolonged standing or sitting, high-sugar meals, and hormonal changes.

  1. How does an individual with dysautonomia feel?

Dysautonomia is a condition characterized by dysfunction in the autonomic nervous system, leading to a wide range of symptoms. Individuals with dysautonomia may experience dizziness, fatigue, heart rate blood pressure irregularities, digestive problems, temperature regulation issues, exercise intolerance, cognitive difficulties, and psychological symptoms such as anxiety and depression. The specific symptoms and their severity can vary widely, requiring a thorough medical evaluation for diagnosis and individualized management.

  1. What is the role of the neurologist in autonomic dysfunction?
  2. Is a person with autonomic dysfunction considered disabled?
  3. What are the different types of dysautonomia?
  4. What can cause autonomic dysfunction?
  5. What kinds of mental health professionals can manage dysautonomia?
  6. What type of dysautonomia is life-threatening despite lifestyle changes?
  7. What is the lifespan of people with dysautonomia?
  8. What organs are affected by dysautonomia?
  9. Can you fully recover from dysautonomia?
  10. How disabling is dysautonomia?
  11. What triggers dysautonomia?
  12. Why do people get dysautonomia?

Cognitive-Behavioral Therapy For Dysautonomic Syndrome: Will It Work?

 

 

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Transforming one’s thoughts will ultimately result in positive actions and behaviors in difficult moments. — Greta Gleissner LCSW

 

Dysautonomia comes in various forms such as POTS, MSA, and NCS, but it brings forth the same feelings of frustration, anger, and hatred to the person who finds out they have this disease. Consoling them and saying that everything will be okay isn’t okay since it’s difficult to gauge their daily struggles because of it. Besides, how can they readily accept that the rare chronic illness may stay with them for as long as they shall live?

That is the reason why many dysautonomic patients develop anxiety, depression, and other psychological disorders. Luckily, assistance in the form of cognitive-behavioral therapy (CBT) isn’t too challenging to discover these days. Psychiatrists offer this treatment, whether you go to a regular clinic or in an online platform. The only standing question is, will it work for people with dysautonomia?

 

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Below are some of the things to learn from CBT.

 

  1. Accept The Condition Fast

As asked earlier, how easy is it to continue living with the fact that you have a disease that doctors most likely cannot cure now? Someone who doesn’t have a similar issue cannot possibly fathom its difficulty. One day you’re feeling great, in the next hour, your heart beats so fast that your other organs cannot keep up.

Through CBT, the counselor will help you see dysautonomia as something manageable. Remember, nothing will break you unless you allow it to do so.

You need to repeat creating these new thoughts and behaviors many times before you create new circuits in your brain. — Robert Taibbi L.C.S.W.

  1. Handle The Symptoms Well

As a recurring illness, dysautonomic syndrome patients tend to experience the symptoms regularly, especially when several factors trigger it. The dizziness and chest pain may be bearable if you’re at home with zero stuff to take care of, of course. However, in case you have a small child depending on you or a career to maintain, the setbacks that the illness creates can take a toll on your well-being.

It is impressive, therefore, that a cognitive-behavioral therapist can teach you some coping mechanisms to handle your symptoms well. Though the ideas cannot remedy your problem per se, it may prevent you from going down the rocky road of depression or anxiety.

 

  1. Reduce Stress In Different Life Aspects

Whenever you’re in pain or feeling frustrated about the illness, it isn’t shocking to hear that you yell at your loved ones or distance yourself from them or avoid going to work. In a troubled individual’s mind, their actions are justifiable since the others are healthier than them.

The reality, however, is that you need these people more now than ever. They will support you in any way possible. A stable job is essential as well as your wage will let you try new treatments to cure your dysautonomia hopefully.

Considering you want help in realizing that, get cognitive-behavioral therapy. The sessions can assist you in eliminating stressors even in the future. That may also be beneficial in lessening the symptoms of the disorder.

 

4.Improve Your Way Of Thinking

For folks who carry a chronic disease, it’s common to think that they are worthy of no love. Others assume that they are already useless in the office or, worse, it’s better if they take their lives.

You ought to know this instant that although dysautonomic syndrome is quite rare, there are still hundreds or thousands of individuals with this illness. For sure, they struggle as much as you do due to the condition, or perhaps even more. But giving up is at the bottom of their priorities since they believe that dysautonomia isn’t connotative to the end of the world.

That’s something you will understand during CBT too.

We feel safer when the use of our own two feet is unrestricted. — Tom Bunn L.C.S.W.

  1. Boost Confidence

People with chronic illness aren’t strangers either to shame, failure, and various negativities. In fact, they may feel it more every time they have to cut a meeting short or bail out on a planned trip when symptoms attack. They can’t force their bodies to function differently in such instances, so their confidence level may keep on dropping until they no longer have the will to talk to others.

What a cognitive-behavioral therapist can do is help you see your value as a person. Some individuals have more severe issues to handle, e.g., abuse, trauma, cancer, and diabetes, yet they can keep their chin up while speaking to people. If they can do that, then there’s no reason for you to remain in the shadows forever.

 

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It is undoubtedly a hardship to live with dysautonomia – or any chronic disorder, for that matter. But the thing is, a physical condition does not stay in the same level for long. The longer you carry the illness, the more it can affect your mental and emotional states. Hence, you should consider getting cognitive-behavioral therapy to manage your well-being.

 

The Significance Of Mental Help In Chronic Illness

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Individuals who are diagnosed with terminal illness and chronic medical conditions can sometimes go into major depression and may need psychological support. It is relevant while they obtain treatments to manage their physical problems, they also need substantial psychological and emotional interventions to help them cope.

 

After being diagnosed with Type 2 diabetes mellitus, Sandra is left with more questions than answers with her present situation. Individuals who finally receive the final diagnosis of what’s going on with their body will find it hard to fathom the uncertainty that lies ahead of them.

 

What now? Am I going to die soon? What should I do in order to survive this? These are just a few of the things that will trouble them.

Can you tell that you are going down some rabbit-hole of worry? How do you talk to yourself when you’re feeling depressed and feel that you can’t get out of bed? — Robert Taibbi L.C.S.W.

What is Chronic Illness and how people cope?

 

Chronic illness is defined as a medical condition that lasts for a longer time, usually 3 months or more. Examples of medical conditions that are considered chronic are diabetes mellitus, rheumatoid arthritis, heart disease like hypertension, kidney disorders, HIV/AIDS, lupus, multiple sclerosis, chronic pain disorder, stroke and paralysis, and much more.

 

At first, there will be a denial of the new information. Reactions such as “This can’t be happening to me right now” or “I’m too young.” are usually the first emotions to show. The feeling is a way of coping with the negative information that is highly not favorable to the person.

 

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This will be followed by anger towards anything or anyone. At this time, the person tries to project the unwanted information by being hostile. Because in the first place, she is just more vulnerable, confused and frustrated.

 

As the person comes to terms slowly and proceeds to the treatment process, there will be some form of bargaining. Mostly internal and in the spiritual level, the person will make amends holding on to the notion that there is still a chance to make things go right again. Statements like “If I make this through this treatment, I’ll do everything to be a good wife and mother.”

 CBT and insight therapies rely on the left brain which, compared to the right brain, is emotionally fragile. — Tom Bunn L.C.S.W.

In the midst of all these emotional turbulence, the most devious reaction would be depression. For some, it can be very obvious like having no appetite, showing no interest in usual activities, crying spells, lack of energy and other related manifestations of depression. While others are able to mask their depression and if not detected can result in suicides.

 

The inability of the person to cope and adapt to any effects of illness does not only affect the person, but it can also create an impact to the family, friends and other individuals related to him or her.

 

Impact of Chronic Illness

 

Certainly, the normal and usual routine will now be altered. There will be changes in the activities of daily living like arranging and going to appointments with several doctors and doing therapies. The person may not continue to work due to medical concerns or may not be able to attend social functions anymore. The present condition has created a new world for the person. Sometimes, they feel like they are being isolated or cast away on an island. This is where mental and emotional problems arise.

Transforming one’s thoughts will ultimately result in positive actions and behaviors in difficult moments. — Greta Gleissner LCSW

Why is it important to seek mental help?

 

By seeking mental help, the person can explore ways to help address and resolve any troubling feelings as he or she is slowly adjusting to the new chapter of his or her life. Mental health professionals are the right people to consult and to ask for specific interventions to guide them as they face this ordeal.

 

The support and presence of the family and significant others are also important in this phase. They will serve an important role in the recovery and rehabilitation process that the person is undergoing. As mentioned earlier, family and friends are not spared from the psychological impact of chronic illness. They can also benefit from the mental health professionals’ therapy sessions with the patient.

 

Source: lifescript.com

 

Aside from a one-on-one consultation with a therapist, the person can also benefit from joining any support groups or attending a group therapy where they are able to share and learn from other individuals having the same medical condition.

Tips On Supporting Your Spouse During Their Battle Against Dysautonomia 

In a relationship wherein one half of the couple has dysautonomia, a condition that the medical world cannot fully understand or cure, it is not only that person who’s having a hard time. Their healthy significant other suffers as well, but not because he or she feels tired to care for the ill spouse. The most likely reason is that it is difficult for them to see the love of their life go through such misery and never have the means to take away their pain. 

 

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 This is about increasing your own awareness of how you think, what you do when you are stressed, anxious, depressed, in pain. — Robert Taibbi L.C.S.W.

If you can identify with that circumstance, please don’t bother to hide it. Every loving individual will feel that way, especially when their husband or wife’s disease is recurring. However, what isn’t true is the thought that you cannot ever help your spouse deal with the health issue. 

Check out the tips on how to support your better half during their battle against dysautonomia down below. 

Inquire 

The first thing that you need to remember is that you can always ask your spouse concerning their mood that day or whatever you do not understand about the disease. You should never be afraid to do that, thinking that it might hurt his or her emotions. Your unwillingness to ask questions may even make them assume that you do not care, which isn’t a terrible lingering idea for couples. 

Listen 

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In case you have a talkative husband or wife, you will not have difficulty in letting them realize that they can talk to you about everything they are feeling. That person will do it without much prompting, no worries. However, if your better half is usually silent regarding the illness, and then he or she speaks up all of a sudden, you ought to listen to him or her well. It is the only way for you to figure out what’s going on in their head before, during, and after a painful episode. 

Transforming one’s thoughts will ultimately result in positive actions and behaviors in difficult moments. — Greta Gleissner LCSW

Plan 

Most chronic diseases luckily take some days off too. Meaning, there will be times in which you can both act as if neither of you has a disorder that keeps on coming back and go on adventures together. To make such occasions extra memorable, therefore, you should plan what places you will visit or what activities you will try months or weeks before that. 

Support 

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Last but not the least, support your significant other in any way possible. If he or she wants to try a new activity, say yes to it. If there’s a blockbuster movie he or she wishes to watch, go for it. Moreover, in times of ordeal, though the spouse may not want you to see him or her in that state, ensure that they know you are around whenever they need anything. 

Some persons have good enough executive function that they can quickly mobilze CBT strategies and keep arousal from rising to the point where their cognition is overwhelmed. — Tom Bunn L.C.S.W.

When you have a till-death-do-us-part type of relationship with your spouse, there is virtually nothing that can stop you from being there for him or her through thick and thin. Sometimes you may argue or get frustrated with each other, but that is normal for any married couple. What matters is that you will not leave your better half during their fight against a chronic illness like dysautonomia. 

10 Mantras To Boost Your Relationship With Yourself

 

 

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Transforming one’s thoughts will ultimately result in positive actions and behaviors in difficult moments. — Greta Gleissner LCSW

A healthy individual can use image training all day long, but he won’t still be able to imagine what it’s like to have an illness like dysautonomia. How can it happen when you’ve never had food change its course on the way to the stomach or your heart hammering in your chest even though you’re resting for hours?

To tell you honestly, going through such occurrences for the first time may invoke a feeling of annoyance within yourself. You might think, “What sins did I commit to deserve this ordeal?” or “When will it ever end?” But the grim reality is that it may never end. You can only work around it; that’s why the lesser amount of time you spend looking for something to blame for your condition, the better your life will become.

In case you’re unsure of how to move in that direction, you may start by boosting your relationship with yourself through the ten mantras below.

 

  1. I’m Lucky To Wake Up Today

As miserable as it may sound, many aren’t lucky enough to see the next morning. Thus, despite having the disease, you’re still fortunate to be awake and alive.

 

  1. My Illness Won’t Weaken MeFor Long

You can’t help it when the symptoms of your illness flare up and cause you to take several steps back. But once they subside, you should be able to stand up again on your own.

 

  1. I Choose To Stay In The Present

 

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As mentioned earlier, it’s inadvisable to dwell on the past and worry about how you ended up in that situation. Even your specialist can’t offer an exact response to that; thus, you better live in the moment instead.

Unlike other approaches the source is not in your past but what happens in the present, in your brain. — Robert Taibbi L.C.S.W.

  1. Giving Up Will Never Be An Option

A quitter, as you know, never wins a thing. You won’t reap benefits from giving up. If you want to see progress in yourself, you have to work hard for it.

 

  1. I’m Trying My Best

While the illness may not have a long-term cure, it does not entail you can’t try different approaches to get rid of your health condition hopefully. Whether you succeed in controlling your problem or not, what matters is that you tried your best.

 

  1. My Mind Is Powerful

What you think of is what you’ll get. So in case you wish to feel great, you should picture that out precisely, and you’ll eventually achieve it.

 

  1. I Thank Each Cell In My Body

Yes, you ought to appreciate every cell that makes up your body. There may be days when you experience unimaginable pain, yet there are more days in total wherein your life is as healthy as possible. That’s due to those cells, no less.

 

  1. I Deserve To Like Myself

You’re hurting your chances of feeling well when you hate being you. It’s okay to admire yourself in front of anyone and do the things that fill your heart with joy.

 

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  1. This Life Is Mine

Saying this statement may allow you to remember that you are the only one who can rule your life, not any disorder you may have.

Certain relational moments cause the release of oxytocin, which inhibits the amygdala, preventing the release of stress hormones. — Tom Bunn L.C.S.W.

  1. I May Be Imperfect, But I’m Enough

The disease may make your way of living diverse from others, yet you’re still complete. Thinking of the opposite will make your detractors happy, so try to refrain from doing that.

 

Doesn’t reading all the mantras above make you want to mend or improve your intrapersonal relationship? Though it may be a struggle at times – mainly if the doctor diagnoses you with a disease that may not even have a definite cause or cure – you ought to give yourself a break. No one wanted you to develop a chronic illness; you surely didn’t ask for it either. But it’s already there, so all you can do is ensure that your life won’t stop moving because of it.

Feel free to recite the said mantras until you believe them 100%.

 

Aspects Of Life That A Psychiatrist Can Assist POTS Patients With

 

Have you ever heard of Postural Orthostatic Tachycardia Syndrome (POTS)? 

It is one of the many autonomic illnesses that wreak havoc in peoples’ lives. Based on a 2014 study from Vanderbilt University in the United States, over three million folks got diagnosed with the disease, and the number most likely rises still. Most of its victims are young women who are already capable of carrying a child. 

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The thing about POTS is that it’s quite hard to spot fast. The patient may experience dizziness, increased heart rate, and migraine – symptoms which are easy to associate with various disorders. Hence, the specialist may require multiple assessments to figure out the real illness of the individual. 

One can only imagine how crazy it must be to submit yourself to all of that for months. And if the person indeed has POTS, they need to deal with the fact that they may have the disease for decades. 

In cases like this, the assistance of a psychiatrist is most wanted. Below are the aspects that the professional can help overcome the mental health of dysautonomia patients.

Transforming one’s thoughts will ultimately result in positive actions and behaviors in difficult moments. — Greta Gleissner LCSW

Frustration 

The ultimate issue that POTS sufferers face is the frustration that comes with waiting for the diagnosis. As mentioned above, it may take ages before a doctor can rule out other illnesses and pinpoint the disease. To make that happen, however, the individual has to get different tests first, which can be bodily, mentally, and economically stressful. 

Being unable to give a name to the disorder also means that the patient cannot receive proper treatment. The physician may prescribe some medicine to lessen the headaches and other symptoms, but those are not enough to remedy the health problem.  

The role of a psychiatrist at this point is to open the person’s mind to allow them to see a hint of positivity from this experience. After all, it’s better to go through trials and errors than to get a misdiagnosis.  

 

Depression 

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It isn’t too far-off to think that POTS may cause depression. Knowing that you have an incurable illness can’t possibly give great vibes. The autonomic disorder makes even standing up a feat too; that’s why people who have this illness may isolate themselves and step away from their social life. 

Going to a psychiatrist, luckily, may help patients realize that the disease isn’t the end of the world. Although there may be tough times ahead, they can learn to handle POTS symptoms if they have the willpower to do so. They may rebuild relationships as well in the process, which is never a bad thing.  

The goal is understanding what happens in your brain and your body when emotions start to overwhelm you. — Robert Taibbi L.C.S.W.

Anxiety 


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The suffers may also worry about making a fool out of themselves in case others find out about their illness. Thus, they may be very cautious when going out or stay in defensive mode whenever someone asks them a question that may or may not have a relation to POTS. 

What’s wrong with this attitude is that the individuals perhaps assume that people will dislike them for having an autonomic disease. While it’s understandable that it’s the need for social acceptance that governs these folks, they need to see too that others’ opinions don’t matter all the time.  

The more receptive a person with POTS becomes around the psychiatrist, the faster it will be for them to get rid of their anxiety. 

Lack of escape is a problem. — Tom Bunn L.C.S.W.

Lastly, POTS patients tend to be as fragile as anyone who just found out they have an illness that the medical world cannot cure today. Apart from medication, they deserve to receive counseling help to cope with the situation better. Otherwise, their negative emotions will overwhelm them too much and push these people to make irrational decisions.